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JJB Honors World Rare Disease Day 2013 FLASH MOB: March 3, 2013

World Rare Disease Day (WRDD) was created to raise awareness for all rare diseases worldwide. Did you know that there are 7,000 rare diseases affecting more than 10 million Americans? Did you know that...

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World Symposium 2013: February 12 – 15

The 9th Annual WORLD Symposium, sponsored by the NIH and the Lysosomal Disease Network, will be held in Orlando Florida February 12 – 15. MPS III C scientists Alexey Pshezhetsky and Carla Martins will...

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RDLA Honors World Rare Disease Day: February 26 – 27, 2013

Join RDLA and 200 rare disease advocates in Washington, DC to honor Rare Disease Day: February 26 – 27, 2013. The Conference and Lobby Day are free and open to the public. The Rare Disease Legislative...

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